How 23andMe customers can protect their data after the company's bankruptcy filing
South San Francisco-based 23andMe filed for Chapter 11 bankruptcy protection on Sunday and said it would pursue a sale, after years of struggling to find a sustainable business model.
Many 23andMe customers signed up to the genetic testing service in hopes of learning fun or interesting information about their past.
But consumer advocates are now urging those users to request the deletion of their accounts and data from the site, to prevent their genetic information from ending up in unexpected hands.
KCRA 3 was joined by Jason Kelley from the Electronic Frontier Foundation on Tuesday to talk about data protection.
"A lot of people are concerned with just how private DNA data is," said Kelley. "It reveals things like biological traits, propensity for diseases, not to mention your ancestry and your relatives."
He said that because DNA can't be altered, people are worried about bad actors misusing their genetic information in the future.
For tips on deleting your 23andMe profile, Kelley's insights on other genealogy and more, watch the video player above.
How to delete
To delete data from 23andMe, customers should log in to their account and navigate to the “Settings” section of their profile. At the bottom of the page, click on “23andMe Data,” and then “View.” Users can then download their genetic data for their own, personal use before scrolling to the “Delete Data” section and clicking “Permanently Delete Data.”
If customers previously opted to have their saliva sample retained by 23andMe, they can also request that it be discarded under their account settings page, under “Preferences.” And users can also withdraw consent to have their genetic information used by third-party researchers under “Research and Product Consents.”
In an interview with ABC News on Monday, Bonta warned that consumers could encounter a slow or glitchy website when they go to delete their information, but encouraged them to keep trying.
“I was attempting to delete my data today, and the website was down today at times,” Bonta said, adding that the outage may have been caused by heavy traffic to the site with many people seeking to delete their data.
CNN contributed to this report.
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